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Hi, everyone! I'm Ellen and I've been battling cancer for six years now, have had multiple surgeries and deal on a daily basis with fatigue, mobility issues and medium-to-severe neuropathy due to adverse reactions I've had to certain chemo drugs. We started visiting WDW prior to my initial diagnosis and since then, I've learned how to best travel with the limitations I now face.
At my workplace, I'm very active with what we call our AccessAbilities network, and work with people with a wide variety of chronic conditions and physical limitations. It is wonderful to see the same awareness here in my "other job."
Originally Posted by Jenemmy
This is really so great! Love that Intercot accomodated us!!
It's not that INTERCOT accomodated us! It's that INTERCOT is a COMMUNITY first and foremost, that welcomes all types of people, united by our passion for all things Disney! I think the other mods will agree that it doesn't matter how we get here, but that we ARE here! If we can share information about where the best dining spots or plushest towels are found, we most certainly will share tips we've garnered about travelling to our happy place. This forum will provide us with the opportunity to have more focused discussions about how best to do that!
Ellen
INTERCOT Staff: Dining, Disney Cruise Line, Guests with Special Needs
Next up:
Christmas with the Mouse
President's Week 2013
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Our focus has been around dealing with mobility challenges (my mom has used a scooter for her last few trips do to hip surgeries). And the level of ride "bounce" that she can handle as a result.
Natalie
Feb 2001 off site Jan 2002 All star movies Dec 2002 All star sports jan-04 Poly Nov 2004 pofq Nov 2005 Pors Mar 06 at PORS CBR Dec 2006 POR sept 21-30 2007 oct 2008 poly and akl, dec 2008 pop and VWL
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Originally Posted by TheDuckRocks
Hi, everyone! I'm Kay and just maybe the oldest Intercotee posting on a regular basis. I have psoriatic arthritis and other health issues that's makes walking difficult. I spent about 10 years not going much of anywhere because of this. Thank goodness for Disney and their understanding of how to make travel doable for guests with special needs. I am now able to get around the use of an ECV and am expanding my travel plans far into the future and to many different places.
I will be keeping an eye out on this forum to help anyone who needs info on moblity issues that I have run across and the answers I have found.
Well, Kay, I THINK we had this discussion before, but I don't remember which of us is older. We're both near the top of the heap, age wise, and regularly posting.
I'm Marilyn, and I have Multiple Sclerosis, and severe arthritis. I LOVE Intercot, and will ahppily try to answer any questions about getting around WDW, (or DLR), on wheels.
REMEMBER WHO YOU ARE!!
1998 Shades of Green
1999, 2000,2001, Shades of Green
2002 Contemporary - 2003 Contemporary - 2004, 2005,2006, Shades of Green
Dec. 2007 First trip to Disneyland
Dec. 2008 Shades of Green & JQ "meet"
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Hi, I'm Mikki. My husband Andrew, who some of you may have met at the meet, is legally blind by UK standards. He can see a little (something like he sees at 2 feet distance what I would see at 60 feet) and is totally color blind. This is since birth.
He has also had two kidney transplants. The first did not take properly but the second has been going fine for 28 years now! Just incredible! Inbetween the two his bones became very brittle and he actually lost 4 inches of height so has a slightly odd look and bent back. He also has some hearing loss, but maybe that is just the wife talking who says the husband never listens!
He really enjoys Walt Disney World.
Mikki
INTERCOT staff - DVC, Characters, Collectibles and Games
2017 Feb WDW Festival of Art and hopefully winter sunshine
2017 Aug Disneyland bound
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Hi all! My name is Kat and I wanna say thank everyone for this forum, I have hypertension and am partialy Deaf. And Disney is my favorite vacation spot because they are so wonderful to everyone and and they accomodate most anything.
I am willing to answer anything I can for people who need help with these two disorders. I am going to the world Dec 7-15, Mar 20-27, and April 20-25 so as long as I am not there I will answer.
DEC 2005 Pop Century
Oct 2006 Old Key West
Dec 2007 All Star Sports
Sept 2008 Pop Century
February 2012 off property!
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Originally Posted by dlpmikki
He has also had two kidney transplants. The first did not take properly but the second has been going fine for 28 years now! Just incredible! !
Wow, congratulations!! 28 years is a long time and I sure hope my son's lasts that long! Who knows, by then they may be creating new kidneys from our own cells and we won't need donors anymore We made it through the first year so it's looking good right now!
Kelly
4/98 Offsite
11/03 Make a Wish Trip
8/05, 4/07, 4/08, 4/09, 4/11, 4/12, 4/13, 4.14
Sheraton Vistana Resort
11/07 Hilton Grand Vacations Sea World
Next Trip: 04/15 Sheraton Vistana
Give the Gift of Life; Be an Organ Donor!!
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Originally Posted by kbarletta
Hi all! My name is Kat and I wanna say thank everyone for this forum, I have hypertension and am partialy Deaf.
Howdy, this is my first trip to WDW since being diagnosed with hypertension so I am interested to see how well I can keep my levels down on the trip.
The only life I can think of that would be worse than being a special needs mom is not being one...
Poly (04), WL (06), BC (07), AoA (20)
DL (74, 75, 83, 87, 98, 07, 09. 10)
Magical Journeys is the ONLY way to go!
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Well its not easy but it is not impossible either. For me its a lot of looking at menus before we select places to eat, but also knowing what I just won't be able to ride.
I was diagnosed a few years ago and during our first trip rode everything, but at that point I wasn't on any meds. The last trip we went on I was on an ACE inhibitor and that changed a lot for me. It took me a while to realize that I was getting incredibly dizzy after the rides from the meds. Now, for me, that was the only side effect but my doctor said to take it easy no Mission Space, or ToT, or Rockin Roller Coaster.
I just went on a pretrip check up and my numbers are good (how I don't know when I keep reading posts here and getting increasingly excited!)
Also I'm sure you've been told but watch what pain relievers you use they can push you up a few notches. By the end of the day I usualy have to take something for my knees or head from the noise, being able to hear out of only one ear in loud places does funny things to ya!
If you need help finding menus let me know!
DEC 2005 Pop Century
Oct 2006 Old Key West
Dec 2007 All Star Sports
Sept 2008 Pop Century
February 2012 off property!
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Hi All!
First, my prayers and a lot of pixie dust go out to all of you who are traveling a harder path than I am. God bless you all!
I have been diagnosed with a mild to moderate case of Crohn's disease. This requires me to watch what I eat...in my case, fiber is bad! It's not too hard to find good stuff to eat at Disney, but I do have to ask for plain white rolls rather than multi-grain. The medication I am on (Imuran) caused fatigue and some dizziness.
Dave, my better half, is a stroke survivor. He is also on lots of blood pressure meds (stroke caused by undiagnosed hypertension...it really is the silent killler!). He is easily fatigued, but is doing great right now.
I'd be happy to share information with anyone who has any questions.
Meg
DVC Owner at AKV and BCV
Upcoming Trips
6/11--AKV & BCV with Kim & Gary
8/11--Alaska on the Disney Wonder
6/12--AKV with Jess, BCV just the two of us
6/14--AKV & BCV just the two of us
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Originally Posted by merlinmagic4
Wow, congratulations!! 28 years is a long time and I sure hope my son's lasts that long! Who knows, by then they may be creating new kidneys from our own cells and we won't need donors anymore We made it through the first year so it's looking good right now!
I quite agree - things have moved on so far since he had his transplant. back in those days you were in isolation for a week and hospital for a lot longer than that. Now you are in and out in a couple of days. In another 20 years maybe that Star trek film scene will be true - give someone a pill and they regrow the kidney!
Mikki
INTERCOT staff - DVC, Characters, Collectibles and Games
2017 Feb WDW Festival of Art and hopefully winter sunshine
2017 Aug Disneyland bound
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Hi,
I am Wendy and one of the Magical Journeys TA's! In my "former life" I taught Special Needs for 12 years...everything from Learning Disabilities to moderately delayed/autistic, etc. My teaching background really comes in handy helping my clients who have special needs.
I am also the mom of two boys...one of whom has struggled with a blood disorder which causes him to have clotting issues! We have done WDW with very low blood counts as well as remission!
This forum is a great addition to the boards and it is looking like a great group of people with great information to share!
I look forward to "hanging" around in here!
Wendy
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Originally Posted by Marilyn Michetti
Well, Kay, I THINK we had this discussion before, but I don't remember which of us is older. We're both near the top of the heap, age wise, and regularly posting.
I'm 7 months older than you, Marilyn. Who would have thought I'd want bragging rights for being the "oldest" at this age.
Old ladies on wheels rock!
KAY
DVC MEMBER - OKW & HHI
First trip to WDW - Dec, 2005
Last visit to Disneyland - 2014
First trip to Disneyland - 1955
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Hi there, I am Heidi, and my DD9 is a stroke survivor (in-utero). She is moderately affected on her right side (her official diagnosis is right hemiplegic spastic cerebal palsy - whew, what a mouthful!) and wears an orthotic on her leg/foot. She has stamina issues (both walking and standing), and when she gets tired, she is subject to "toe-drop" and general unsteadiness - there are times during growth spurts when I think we are single-handedly supporting the bandaid industry as she is very prone to scraped knees as a result of stumbling.
We use a Maclaren special needs pushchair in the parks, and it is wonderful. She can walk, but Disney wears her out in about 30 minutes, so she uses the pushchair intermittantly.
Other stroke/CP related issues that we deal with include sensory integration and hypersensitive gag and startle reflexes.
WDW holds a special place in our hearts for many reasons, but the primary one is that every CM we meet seems to go out of there way to make DD feel special/normal all at the same time. She still loves all the princesses, but has also discovered thrill rides - she has plans to get me on RNR in a couple of weeks
This is a great addition to intercot - thanks for thinking of it!
Daytrip 2001
HI FamilySuites (now Nick Hotel) 2003
POR - 2005
WL 2006, 2007
Cabins 2008
Jan. '10 DS turns 5 - quick trip with Mommy at ASMo
June '10 Grand Gathering at the Cabins
Fall '11 POP last minute surprise
Summer 2012 Beach Club and Cars Art of Animation
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Im really happy to see that there is a forum just for special needs.
My husband has cerebral palsy. He walks differently. Hard to describe. He used to walk with a cane but now walks with a walker/rollater but in Disney will be renting an ECV from Buena Vista Scooters.
Im hearing impaired. I wear a body aid because I was born with out an inner or outer ear. I had reconstructive surgery to make outer ears. I talk really well but when Im in noisy places I have trouble hearing. People are amazed that I speak well and have balance. They cant tell Im hearing impaired either. Im also obese & will be renting an ECV when Im in Animal Kingdom & EPCOT.
Off topic but Im afraid of roller coasters.
My Honeymoon Trip was 4/16/01. Stayed at All Star Movies.
Went 11/2001. Stayed at Carribean Beach
Went December 7th-19 2007. Stayed at All Star Music. Jazz
April 14-May 3rd 2008. Stayed at Pop Century. 50s Era.
Upcoming Possible Trip:
Nov. 17-Dec 1 2008: Staying at All Star Music
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My DS, 10, has an autistic spectrum disorder and we've been taking him to WDW since he was 4. I'm happy to see this forum as a great resource and if I can be of any help to anyone please feel free to PM me.
Trips: Too Many to Count! Last Trips: April 2013 CSR; July 2013 Aloha Aulani, The Sequel, Hawaii. Multiple trips to WDW, DL, DCL!
Coming up: September 2013 "Scary September" at Disneyland/DCA/Universal Hollywood.
Proud DVC Members since 2004!
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Hello everyone. I'm deb. I have taught middle school and elementary aged children for 30 years. About 20 of those years I taught special needs children. My students have dealt with mobility issues, autism, developmental delays, cerebral palsy, genetic disorders, learning disabilities and health impairments.
I have had a heart attack and a stroke. I had heart surgery to correct a physical defect in my heart that caused my MI. I am diabetic and hypertensive.
For years my doctors would not allow me to ride Rock n Rollercoaster, Mission Space and ToT. This past year, I was allowed to ride these thrill rides after a ten year hiatus! YAY!
I did all of the above during Intercot's anniversary bash!
Anyhoo, I hope I can help if I am needed.
Yes, Intercot rocks and so does its members!
first visIt: November 1973
last visit: December, 2012
next planned visit: October, 2013 with friends
resident Fairy Godmother
hearts are warmed when friends meet
see ya real soon
~*~*~*disneydeb*~*~*~
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