Hello everyone!! My name is Lori, from chilly Cape Cod! Our 14 year old daughter, Rachel, has a rare genetic brain disorder called Aicardi Syndrome. She has a trach, g-tube, epilepsy, mental retardation, no purposeful movement, and is legally blind. She is SO happy at Disney!!!! We are in the process of planning our early December '09 trip!! anyone else planning to go then????
We also have a VERY active 7 year old son. My hubby and I have been married for 17 years, and LOVE vacationing at Disney!! Everyone is so accommodating there, to Rachel's needs! The first aid rooms are great for changing her (she's totally incontinent) and doing Chest PT, or whatever else needs to be done. We love the magic of Disney!!
Lori.