14 year old with Aicardi Syndrome
Hello everyone!! My name is Lori, from chilly Cape Cod! Our 14 year old daughter, Rachel, has a rare genetic brain disorder called Aicardi Syndrome. She has a trach, g-tube, epilepsy, mental retardation, no purposeful movement, and is legally blind. She is SO happy at Disney!!!! We are in the process of planning our early December '09 trip!! anyone else planning to go then????
We also have a VERY active 7 year old son. My hubby and I have been married for 17 years, and LOVE vacationing at Disney!! Everyone is so accommodating there, to Rachel's needs! The first aid rooms are great for changing her (she's totally incontinent) and doing Chest PT, or whatever else needs to be done. We love the magic of Disney!!
Lori.
Guest assistant card at MK
Hello all. My family and I just returned from visiting DisneyWorld May 11-17. We have a 4 year old son with High functioning Autism. He did so well there we were surprised. We had heard about the guest assistant card ahead of time and got one on the first day. That card was a life saver for us. We were able to use it as a fast pass and on a few rides (like Dumbo) skip the line. I know to some of you that seems like cheating, but a 45 minute wait is like 4 days in our world. We were able to use the GA Card in part of Toon Town...We found out that they were changing the rules to not allow autistic kids to jump the lines for the characters. I calmly explained that my little guy would not get to see mickey mouse if we had to wait in a line that was 1 hour long. My little guy simply can not do it. His melt downs are worse than a 2 year old after waiting for 10 minutes. When we spoke to the manager she let us through. I am encouraging all parents whether they are going or not to write disney and let them know the reasons why they should not change this policy. The more we write the more understanding people can become.
Thanks
Melissa